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See more 4 Nov 2019 Policy Brief: withdrawing consent to data processing under the GDPR See more News 1 Nov 2019 EJP RD promotes global data sharing to bring hope to rare disease patients See more News 22 Oct 2019 Announcing five new standards at GA4GH 7th Plenary meeting See more News 22 Oct 2019 Crypt4GH: a secure method for sharing human genetic data See more News 22 Oct 2019 Data Security Infrastructure Policy: updated guidelines for implementing widespread security policies See more News 22 Oct 2019 Phenopackets: standardising and exchanging patient phenotypic data See more News 22 Oct 2019 Tool Registry Service API: enabling an interoperable library of genomics analysis tools See more News 22 Oct 2019 Variation Representation: a standard way of exchanging genetic variation data with precision and consistency See more News 4 Oct 2019 Webinar recap: automating access to human genomics datasets the GA4GH Data Use Ontology in action See more 3 Oct 2019 Policy Brief: Japan obtains the first adequacy agreement under the GDPR See more News 1 Oct 2019 Guest post: seven myths about CRAM the community standard for genomic data compression See more News 30 Sep 2019 Your DNA, Your Say publishes study on trust in english-speaking populations See more News 24 Sep 2019 Revised GA4GH regulatory and ethics policies emphasize transparency and proportionate safeguards See more News 18 Sep 2019 Webinar: automating access to human genomics datasets using the GA4GH Data Use Ontology See more 2 Sep 2019 Policy Brief: the Data Protection Impact Assessment and genomic health research See more 5 Aug 2019 Policy Brief: codes of conduct under the GDPR a useful but challenging tool to enable responsible international data sharing See more 1 Jul 2019 Policy Brief: are pseudonymised data within the GPDR's scope